Information Sharing

Your Data Matters National Programme

Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. In May 2018, the strict rules about how this data can and cannot be used were strengthened. The NHS is committed to keeping patient information safe and always being clear about how it is used. You can choose whether your confidential patient information is used for research and planning. To find out more visit:

Also read the Information Commissioner’s Office leaflet "Your Data Matters to the NHS" .

Patients can no longer opt out via their GP Practice but must contact the NHS directly.  You must be aged 13 or over.   To manage your choice go to

or ring the helpline on 0300 303568.  

You can also print off the form and when completed post to NHS, PO Box 884, Leeds LS1 9TZ.

Resources including accessible resources can be accessed at:

Summary Care Record

Your Summary Care Record is a short electronic summary of your GP medical records. It tells other health and care staff who care for you about the medicines you take, allergies you suffer from and any bad reactions to medicines you have had. 


Why do I need a Summary Care Record?

Storing information in one place makes it easier for healthcare staff to treat you in an emergency or when your GP Practice is closed.

This information could make a difference to how a doctor decides to care for you, for example which medicines they choose to prescribed for you.

Who can see it?

Only healthcare staff involved in your care can see your Summary Care Record.  

How do I know if I have one?

If you are registered with a GP practice in England your SCR is created automatically, unless you have opted out.  98% of practices are now using the system. Ask your practice if you are unsure if you have one.

Do I have to have one?

No, it is not compulsory. If you choose to opt out of the scheme, then you will need to complete a form and bring it along to the surgery. You can use the form at the foot of this page.

More Information

For further information visit the NHS Care records website or the NHS Digital Website

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